# How long have you had T1? **URL:** \ **Category:** Find Community Support\ **Created:** [April 22, 2011, 5:15pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673 "2011-04-22T17:15:16Z")\ **Posts on this page:** 20\ **Page:** 3
**Author:** ![scottt](https://avatars.discourse-cdn.com/v4/letter/s/f05b48/32.png) [@scottt](https://forum.breakthrought1d.org/u/scottt)\ **Post date:** [September 28, 2011, 10:37pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/41 "2011-09-28T22:37:04Z")
Tom, that is awesome!  I want my 50 year medals too!!  I am so happy to hear that things do go well with care. ---
**Author:** ![scottt](https://avatars.discourse-cdn.com/v4/letter/s/f05b48/32.png) [@scottt](https://forum.breakthrought1d.org/u/scottt)\ **Post date:** [September 28, 2011, 10:40pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/42 "2011-09-28T22:40:00Z")
I too had/have bi-lateral frozen shoulders - for about 3 years.  The only explanation was diabetes.  I did not do surgery and after 3 years of severe pain, I am mending well. ---
**Author:** ![tcw](https://avatars.discourse-cdn.com/v4/letter/t/7993a0/32.png) [@tcw](https://forum.breakthrought1d.org/u/tcw)\ **Post date:** [October 3, 2011, 4:00am UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/43 "2011-10-03T04:00:19Z")
I am now 42 years old and diagnosed 1980.  31 years no complications...  Thank goodness for that!  I like hearing about other peoples experiences...  I do not talk about it too much..   ---
**Author:** ![Candace06](https://avatars.discourse-cdn.com/v4/letter/c/a9a28c/32.png) [@Candace06](https://forum.breakthrought1d.org/u/Candace06)\ **Post date:** [October 3, 2011, 5:38pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/44 "2011-10-03T17:38:30Z")
I was diagnosed 14 years ago (at age 9). How have all your a1c's been? I have had no complications so far, but my a1c last week was 13! Since I took my pump off 2 years ago I have been running high, but not this high. It made me really nervous and scared that I am going to develop complications soon. ---
**Author:** ![scottt](https://avatars.discourse-cdn.com/v4/letter/s/f05b48/32.png) [@scottt](https://forum.breakthrought1d.org/u/scottt)\ **Post date:** [October 3, 2011, 6:08pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/45 "2011-10-03T18:08:09Z")
That's great! Keep up the great work. ---
**Author:** ![scottt](https://avatars.discourse-cdn.com/v4/letter/s/f05b48/32.png) [@scottt](https://forum.breakthrought1d.org/u/scottt)\ **Post date:** [October 3, 2011, 6:13pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/46 "2011-10-03T18:13:23Z")
I used to be over 10 with my A1c ... I don't live by it, although I know there is solid evidence that would say that being as close to "normal" is optimal.  But I do know some T1's that have complication despite being in very tight control, and conversely, T1's that are not well controlled and are fine over 30+ years with diabetes. My last A1c was 7.1  ....  I am fine with that number.  I used to be much higher until I started using the pump in 1997. ---
**Author:** ![DonnaL](https://avatars.discourse-cdn.com/v4/letter/d/e8c25b/32.png) [@DonnaL](https://forum.breakthrought1d.org/u/DonnaL)\ **Post date:** [October 4, 2011, 2:32am UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/47 "2011-10-04T02:32:02Z")
" But I do know some T1's that have complication despite being in very tight control, and conversely, T1's that are not well controlled and are fine over 30+ years with diabetes." I too, was diagnosed at the age of ten. August was the start of year 45 without any complications. One common concern is, "what was your last A1C. Question; when we aren't trying to gain or loose weight, we stabelized  in to a "natural" weight when we quit trying to gain or lose. Do you think that our bodies stabelize  at a "natural" A1C? My A1C's have never been below 7.1 no matter how hard I try. It's never been above (except at diagnoses) 7.8 when I don't try at all. Anyone else notice this? ---
**Author:** ![bwilfong24](https://avatars.discourse-cdn.com/v4/letter/b/8491ac/32.png) [@bwilfong24](https://forum.breakthrought1d.org/u/bwilfong24)\ **Post date:** [October 8, 2011, 5:02pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/48 "2011-10-08T17:02:37Z")
Hello all :) I have been T1 for 15 years now, diagnosed right after my 10th birthday.  I really didn't start taking care of myself until about 3 years ago. Growing up I just didn't want to deal with it. I mean, what 10 year old can even comprehend what's going on? My highest A1c was over 11, and now I have it down to 8.5 :) I still have a long way to go, but it's definitely a start! No serious complications as of right now. I recently tested positive for microalbuminuria and was put on lisinopril. Also, I have the beginning stages of glaucoma and have cataracts forming in my left eye.  I am grateful that is all that I have wrong right now! I never knew anyone else that had T1 growing up so it's nice to see all of your comments and know I am not alone! You are all an inspiration. Bryanna T1 since Sept 1996, Medtronic pump since 2004 ---
**Author:** ![VolsLadybug](https://avatars.discourse-cdn.com/v4/letter/v/f4b2a3/32.png) [@VolsLadybug](https://forum.breakthrought1d.org/u/VolsLadybug)\ **Post date:** [October 17, 2011, 9:08pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/49 "2011-10-17T21:08:22Z")
I just turned 26 and have been diagnosed type 1 for a year and 4 months. soo far no complications except the daily struggle to keep sugar under control. at diagnosis my A1C was a startling 13 my last A1C i had done was a 6.0 and all my lab work came back great, Next appt is early november and i should be having another a1c done then.. soo hopefully it wont be too bad. I have to say i was happy with the results i got and look foward to meeting ppl that i can talk with and relate to on here. :) ---
**Author:** ![toomshum](https://avatars.discourse-cdn.com/v4/letter/t/8e8cbc/32.png) [@toomshum](https://forum.breakthrought1d.org/u/toomshum)\ **Post date:** [October 18, 2011, 11:22am UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/50 "2011-10-18T11:22:19Z")
I am a new member to the Juvenation group. I have had T1 for 14 years now and I am 24 years old. I would like some advice on conception with T1. My HbA1C is 6.2 and I have Hypo-thyroidism, which is under control and a slight form of reflex-epilepsy. How difficult would you think it is to get a healthy and happy child without too many complications for either me or the baby? ---
**Author:** ![rosem617](https://avatars.discourse-cdn.com/v4/letter/r/4491bb/32.png) [@rosem617](https://forum.breakthrought1d.org/u/rosem617)\ **Post date:** [October 24, 2011, 3:26am UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/51 "2011-10-24T03:26:08Z")
Hi toomshum, I have had T1 for 36 years, and hypothyroidism for 20.  I wanted to let you know that you can have a healthy and happy child without too many complications.  I think the key is to keep your HbA1C where it is at, and work closely with your healthcare team.  I have two children ages 17 and 15 and both are healthy.  Good luck to you! Rose ---
**Author:** ![Alish](https://avatars.discourse-cdn.com/v4/letter/a/a3d4f5/32.png) [@Alish](https://forum.breakthrought1d.org/u/Alish)\ **Post date:** [October 24, 2011, 3:21pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/52 "2011-10-24T15:21:29Z")
Hi, I have had T1 for 6 years, hypothyroidism for the same and polycystic ovarian syndrome for 13 years or so. I had an unplanned pregnancy nearly 4 years ago, my a1c was about 9 at the time that I got pregnant. I had very tight control over my BS during the pregnancy and my daughter was born happy and healthy :) She is now 3 and so far so good, still remains healthy. I didnt have any problems during the pregnancy either besides battling low blood sugars. Good luck to you! ---
**Author:** ![paigep7](https://avatars.discourse-cdn.com/v4/letter/p/74df32/32.png) [@paigep7](https://forum.breakthrought1d.org/u/paigep7)\ **Post date:** [October 25, 2011, 8:14pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/53 "2011-10-25T20:14:36Z")
I was diagnosed at 14 in 2005, so it's been about 6 1/2 years. I'm so grateful for all of the ways we can treat this terrible disease. I still struggle, but my a1c is coming down. It really IS like a full-time job. ---
**Author:** ![RCP](https://avatars.discourse-cdn.com/v4/letter/r/a183cd/32.png) [@RCP](https://forum.breakthrought1d.org/u/RCP)\ **Post date:** [November 7, 2011, 10:37pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/54 "2011-11-07T22:37:15Z")
Scott - it has been 35 years for me. I was diagnosed at the age of 7...been using an insulin pump since 2002...no complications. Glad to hear all is going well with you. ---
**Author:** ![pquine1](https://avatars.discourse-cdn.com/v4/letter/p/d26b3c/32.png) [@pquine1](https://forum.breakthrought1d.org/u/pquine1)\ **Post date:** [November 10, 2011, 12:15am UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/55 "2011-11-10T00:15:05Z")
20 years in December!! Glad to see so many people have had it longer than me and are healthy. 20 is a scary number for me but not so much after reading all this!! Here’s to many more healthy years! ---
**Author:** ![pquine1](https://avatars.discourse-cdn.com/v4/letter/p/d26b3c/32.png) [@pquine1](https://forum.breakthrought1d.org/u/pquine1)\ **Post date:** [November 10, 2011, 12:23am UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/56 "2011-11-10T00:23:38Z")
Diagnosed at age 11. On Minimed pump since 1998. Haven’t had a1c over 7.1 since the pump! ---
**Author:** ![scottt](https://avatars.discourse-cdn.com/v4/letter/s/f05b48/32.png) [@scottt](https://forum.breakthrought1d.org/u/scottt)\ **Post date:** [November 10, 2011, 1:03pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/57 "2011-11-10T13:03:23Z")
That's awesome Paul! ---
**Author:** ![scottt](https://avatars.discourse-cdn.com/v4/letter/s/f05b48/32.png) [@scottt](https://forum.breakthrought1d.org/u/scottt)\ **Post date:** [November 10, 2011, 1:05pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/58 "2011-11-10T13:05:13Z")
Thanks ... glad no complications!  Thanks for responding!  Scott ---
**Author:** ![scottt](https://avatars.discourse-cdn.com/v4/letter/s/f05b48/32.png) [@scottt](https://forum.breakthrought1d.org/u/scottt)\ **Post date:** [November 10, 2011, 1:06pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/59 "2011-11-10T13:06:49Z")
It is a FT job+ .... and I am grateful as well that it can be treated. ---
**Author:** ![Elana21](https://avatars.discourse-cdn.com/v4/letter/e/3d9bf3/32.png) [@Elana21](https://forum.breakthrought1d.org/u/Elana21)\ **Post date:** [November 24, 2011, 4:27pm UTC](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673/60 "2011-11-24T16:27:35Z")
Hi Scott, I was diagnosed when I was 9 years old and I am now 53.  I also had a bout with Retinopathy. I had lazier treatment when I was 19 and thankfully It's been many years that I had to have more.  I have learned that lots of exercise is the key.  I became a runner over a year ago and in better shape than ever.  I feel great and keep my blood sugars down.  I've never let this stop me from doing anything and everything! Elana [Previous page](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673.md?page=2) [Next page](https://forum.breakthrought1d.org/t/how-long-have-you-had-t1/13673.md?page=4)