Hi everyone. I am newly diagnosed as of Wednesday of this week as a 40 year old.
Im a mom to a type 1, my sister has it and my grandfather had it, so I learned a thing or two about it many years ago. Knowing as much as I do in taking care of my son (he was dx’d at 14, hes almost 21 now) helped me in knowing I can manage this.
Ive had a few moments of overwhelm, being that my primary care doctor is awful and its been a stressful few days getting insulin, answers to my questions, and trying to navigate getting set up with an endocrinologist.
I had all the bloodwork a month and a half ago that stated my A1C was 8.5 and fasting glucose was 269. Then, I told my doctor about TrialNet and how I was tested 8 years ago. They told me if I ever develop diabetes it would be Type 1, and to make sure my doctor knew. Well, I told her this, and she wrote me off as if I didnt know what I was talking about, and didnt want to believe it was type 1. “I would be very surprised if it were type 1. Adults hardly grt that.” But because I insisted, she tested me for the antibodies. Sure enough my GAD was 27. So, theres that. The results came back 2 days after the tests were done, and I was forced to wait a month for the diagnosis I knew I had, and medication, even though I called and emailed trying to get a quicker confirmation. “You need to wait till your telehealth on the 28th”, they told me.
Am I wrong for being so upset that I had to wait so long? I feel lucky to not have gone into DKA.
To add insult to injury, I practically had to beg for insulin, as if I dont need it or something. “Not all type 1 diabetics need novolog,” I was told. She barely wanted to provide me with Lantus.
Im glad I advocated for myself. By the time I picked up my prescriptions 2 days ago, I was peeing ketones. I dont want to imagine what would have happened if I was forced to wait any longer.
Well, its nice to be here, nice to meet all of you, and I hope to connect with other ladies like me with T1D. Im in SW Florida.