Sherry @SherryP, I feel fortunate, very lucky to have been in the right place at the right time and receiving wonderful support and encouragement, seeing now looking back, from my family.
Your new success in managing your diabetes is impressive; just be careful while your body appears to still be able to produce insulin that you don’t give too much and drive yourself into hypoglycemia - I think it is usually safer to alloe yourself to go a bit high, and correct later, than to need to overcome a low. You can expect to be changing your insulin regimen frequently, especially while getting your body adjusted to this “new” thing. A slide I have used in presentations reads "The one constant in diabetes is CHANGE!
My thought, effective diabetes management is to allow, permit, encourage me to live a full and active life, achieving what I want, eating regular human meals [about 260 grams of carbs so far today] and using “the numbers” as guideposts, not goals. And then, as it turns out, doctors say my TIR and HbA1c results would cause a new doctor on scene to not accept that I am living with diabetes.
Dennis, I had a hypo twice last night. Once right after dinner & the other one was during the night. I thought I gave myself the correct #of units for my dinner. My I:C ratio is 1 unit for every 15 carbs. Sometimes that works, but last night it did not. Then when I got up this morning my BG was high. I hate the blood sugar rollercoaster. I’m a perfectionist and it’s definitely working against me in dealing with diabetes!
you can get Type 1 diabetes at any age @dtuck, welcome to our club! Hope you find information you need and feel free to reach out with any questions you might have.
Sherry @SherryP, roller-coasters are lots of fun, the kiddie kind that only for 10 feet high and have a loooong gentle slope that takes hours and doesn’t go into a hole. A dream!
Type one Diabetes, which can be effectively managed with time and effort can NOT, in my opinion and opinion of some “experts” be controlled - so perfection is out the window. If T1D was the simple thing that could be “controlled” by observing activity effect, counting carbs, and dividing those carbs by a constant and injecting insulin our life would be a joy BUT, as you have observed over the years and now firsthand, there are dozens of life [other than the three I mentioned] that affect our body glucose levels. As an example, I eat a very similar lunch, 70 gm carb, almost every day, the same 1:17 I:C ratio following a pre-lunch 4 mile walk at 3.0 mph and usually slide into supper at about 110 mg/dl target; today because of a meeting attended, my walk wasn’t quite 3 miles total yet, an hour before supper I needed 10 grams of carbs to bring me to 102 for suppertime. I can’t rationalize the reason, so I’m accepting and will move on and if needed, make an adjustment in a couple of days.
A suggestion Sherry, follow your BGL graph for a few days and see if you are having a pattern and if so, lower your I:C ratio from the current 1:15 to something like 1:18 and see if that helps.
As I recall, you are using a Dexcom CGM. One of the reports you can easily see on your phone, and on the web Clarity, is Patterns - if s pattern is observed/detected, Dexcom will offer some possible solutions. I make many, many small adjustments during the course of a year and observe results for at least three days before making additional shifts.
Hi, I noticed in a now closed post your experience with T1 and the military. Another member linked an article about "no evidence vaccines caused T1 DM. I have found a rebuff to that argument and wanted to share the link:
[edit - by moderator]
you are welcome to google:
“Confounding and bias in studies of DMSS vaccination data”:
and find results from NIH as well as science direct.
@surfersangel Thanks for offering the info from the site. However, like @wadawabbit/Dorie, I tried the link and it took me to a site requiring a login I don’t have. Ref the topic: I spent much of working life analyzing situations and evidence. I don’t discount a vaccine “could” cause the problem, it certainly might do so. I “do” question the likelihood and evidence supporting such a linkage other than “belief”. Evidence can very black and white, they can also be pretty flimsy, often more in the realm of “belief” not reaching the level of proof needed to support a conclusion. Examples: Religion almost always lacks adequate proof of the existence of god, a higher entity than “us”, or rationale reason for the belief’s they promote; yet, people are willing to cut ties with family, friends, and even kill those that don’t “believe” the way they do. Politics is another area heavily dependent on “belief” vice reasonable “evidence” or “proof”, other than anecdotal. On a personal note: When I retired from the military, my retirement physical didn’t address, nor did I think/believe I had, disabilities warranting VA compensation. That said, after being retired roughly 20 years, I’ve come to think/believe I was wrong about impacts to my hearing (I was around aircraft engine noise (without protection due to my job requirements), around a considerable amount of weapons fire, tank fire, and had tinnitus diagnosed years before I retired. Further, I recall having to take a glucose tolerance test 3 times for my entry physical for the USAF to determine I could serve. I now “believe” my hearing is at least partly due to the noise exposure I experienced during my service. I also believe my T1D (whether dx’d as LADA or otherwise) has been around many years, possibly going back to my youth, was exacerbated by extensive shift work and stress (studies now link both to T1D) in the military jobs I had. Can I prove with evidence either of these? Depends on what the decision authorities accept or consider as “proof.” We’ll see…
@surfersangelWelcome Diana to the JDRF TypeOneNation Community Forum!
There are some forms of diabetes that mimic Autoimmune Diabetes, currently referred to as T1DDM but are different from T1 in that they are not caused by an internal attack of the body. As was written above the implied cause may have been a vaccine.
It is possible that this variety of diabetes, and there are at least a half dozen varieties, could fall under Classification III - Autoimmune falls in a Class of its own, Classification !. Also in Class III you’ll find Monogenic diabetes, MODY, Agent Orange diabetes, removal of pancreas, and diabetes brought about by certain medicines. Other than monogenic, all caused by outside sources.
The article you posted might be worth discussion in some academic setting. What I find interesting, is why you brought it here so quickly; you spent a total of two (2) minutes visiting this Forum and in that time registered as a Member and posted this article - you didn’t read much here.
hi @surfersangel welcome - I edited your post because the link was causing people to find a paywall. I edited the post to direct those interested in the topic to google the topic themselves. This was not edited for any other reason.
I was introduced to this website during a visit with my endocrinologist at today’s office visit. I was diagnosed at 40 and am now 76.
I struggle every single day trying to maintain my blood sugars from spiking. I am a very happy, contented, woman however I react strongly to my surroundings, (my friend’s bad news, a spat with my spouse, even a sad commercial about abandoned animals and sick children!) All can make my sugar spike.
Is there anyone out there that has the same problem???
hello there @wifewithnolife welcome to Breakthrough T1D. Stress can certainly affect my blood sugar (stress can make me insulin resistant and I will need more insulin), so yes this can influence my blood sugar numbers but for me, probably not create a large spike more of an overall trend upwards over hours of stress exposure. I started using a CGM a few years ago after a terrible low that I did not feel coming. I find the CGM to be helpful to tell me if I am trending up or down and all alone a CGM has helped me see trends and manually adjust my insulin for better control. Recently I am using an AID pump, (automatic insulin delivery). These new pumps can give me more, or less insulin based on my CGM. This is a real improvement for me because now if I am trending, my pump automatically adjusts to keep me between my control limits for much better control of blood sugar without too many lows. If you ever consider using a pump I recommend a pump that automatically adjusts based on CGM.
I had issues with brief intense anxiety a few years back and I talked to my endocrinologist and they tested me for adrenal function. There is a complication of Type 1 where adrenaline is released too frequently, sometimes with and sometimes without a trigger. Adrenaline can cause a spike in blood sugar because it is a “fight or flight” hormone designed to increase heart rate and signals your liver to dump sugar. I do urge you to talk about these spikes with your endocrinologist in case they are concerned with any potential complications that your symptoms are suggesting, or if it is even a problem.
I hope you find answers and speedy relief! Welcome again to our forum and I hope you stay and share your stories, thoughts as well as concerns with us.
Hello Frances. Who’s your endo, I want to sent them a thank you card for suggesting the forum. That’s awesome. Welcome!
I might not be much help, strong reactions from me are more likely to drive my glucose down, but I have talked to enough T1Ds diagnosed as adults to know many of you aren’t your average T1D. Any chance you still produce a little insulin, even if it is just occasionally? Maybe a c-peptide test is greater than 0? Seeing your pump or CGM chart of a day where this happens to you would be a big help but get to know us first before sharing that much. Tell us about your doc, are they struggling with helping you manage diabetes in the real world or have you tried a few strategies they suggested and are still having trouble?
I was quickly diagnosed properly. I saw a PCP in Oct 2025 for annual wellness checkup and it was 7.2. He said to recheck in 6-8 weeks, so I followed up with my regular PCP in mid-Jan 2026 and it was 13.3. He said he didn’t know if T1 or T2 but put me on long-acting insulin that day and sent me to an Endo who I saw the next day. She ordered bloodwork (Zinc Transporter 8 Antibody, Islet Cell AB, Insulinoma Associated Antibody 2, C-Peptide BLD, Glutamic Aciddecar AB), and as soon as all the results came back, she diagnosed me at T1D LADA in late Jan 2026 and also put me on short-acting insulin. So far, I’m doing pretty good. My TIR is 95%.
@wifewithnolife We as a community tend to shy away from sharing specific numbers due to YDMV, and understandably so, as many impressionable people will strive to fit their square peg into others’ round hole. However, I think in some cases it may be overdone. Example: Some people are able to achieve remarkable flat lines of BG numbers while others seem to skyrocket upwards after meals to some level and then slowly work their way back down. I’m interpretting your statement in this way. If correct, then read on, if not, then feel free to stop now. I’ve had this problem since dx, about 45-90 minutes after eating, my BG usually increased dramatically to between 180 and 225 (ok, sometimes 250), and then come back down over the next 2-3 hours…when its time to eat again!…and then repeat. That said, my TIR is 85-95%, TITR is normally about 70%; numbers my Endo says are enviable by many. I’ve used DIY Trio (and previously DIY Loop) as an AID and have adjusted my ICR and other settings small amounts at a time, striving to achieve more apparent control. I’ve found it frustratingly slow, but don’t know how else to do it. I’ve also found BG is incredibly impacted by the amount of activity/exercise (I’m talking walking here, not jogging or weight lifting)…the more, the better, though relaxing and sitting around (mental activity vs physical) “seems” to help initially but then wears thin and I’m right back where I started. I’m trying to stay involved with physical exercise (walking, gardening, etc., though weight lifting still gets the nod of medical folks and may be better). I’ve also come to respect I’m different than those with flat lines and will probably always “spike” a bit after a meal, the trick is to minimize the spike. The adjustment I’ve made is to adjust my ICR intra-day (for different times/meals) and accept a relatively short term (2+ hours) rise in BG (to ≈180) before attempting a CF dose or changing my ICR. I’ve gradually (months) achieved this goal. Perhaps this will work for you or others; and if not the “right” way, I’ll take in comments from others here to adjust my thinking. Hopefully, you find what fits you!
