@wadawabbit thanks for the knowledge. Its reassuring hearing from your guys. I will try to be more paitent and will call my insurance company to see what they cover
@Dennis thanks for your knowledge. And sharing your experience. I will keep thsi in mind. Also i understand pump will noy do magic but it will help giving insulin as sheis little and hard to do pen every time.
A pump is an excellent tool but it is an investment - with the exception of Omnipod there is typically a 4 year commitment, so be sure to think everything through before you commit. Not every child (or adult) wants to wear a pump, and many people do just fine on injections. In fact itâs good to know how to manage with injections in case the person wants to take a pump break or if there is an issue getting supplies.
If you do decide to get a pump your doctor will connect you with a rep. Let that person handle the insurance aspect / it can be confusing trying to do it yourself (trust me - I know from first hand experience).
No. @Kalpesh.gupta You canât share that way (the nurse has real time share info) without a phone. Now you can have a locked down phone, you donât need to touch it or interact with it for share to work, which is a whole lot like having to have a receiver imo. If share with you and the nurse is the goal, the receiver by itself will not work.
You will need to have a 504 plan on place with your daughterâs school, giving them specific instructions on dosing, how to proceed in the event of highs and lows, and other information. You will be working out the details with her medical team. Hereâs some information: Section 504 Plan | ADA
Itâs possible there may be other children with Type1 at her school - ask the school nurse. Due to HIPAA they wonât be able to share details about other kids, but they could share your name with other parents if you request it.
Joe, I think you are focusing on the Dexcom Share feature and instead Kalpesh is asking for the nurse to be able to view the Dexcom estimated glucose value and trend arrow before dosing for lunch. The Dexcom Receiver absolutely accomplishes that. In addition the Dexcom receiver allows the person at school who has primary care of the child to be able to view the current Dexcom EGV and trend arrow with a single press to wake the device.
Many parents do choose to give their children a phone, install the G7 app, pair it with CGM and use the Dexcom Share feature to have the EGV sent to up to 10 people who can use the Dexcom Follow app. Clearly there are pros and cons to giving a 6 year old a phone that have to be weighed by the parent. In the meantime the Dexcom receiver will work and allow Kalpesh to still have their phone paired to the G7.
You are correct that the Dexcom Receiver does not have a network (wifi or cellular) connection so it cannot send the latest EGV to any other device.
Congratulations on surviving week 1!
Quantity per kg is only useful for the first dose of insulin and to provide guard rails for clinicians. Itâs all titration, corrections and experience after that.
Her numbers are still in 400. Is it normal. Its definitely coming down but just a little worried
Oy, sheâs got to be feeling miserable at 400. Iâm so sorry. My personal experience is when Iâm over 200 I need to start adding a little bit to the dose and that âlittle bitâ increases as the BG increases. Since you are still characterizing her response to insulin try adding some activity instead. Go to the park on Sunday and have fun. Keep an eye on the Dexcom, its super easy after dosing for a BS of <400 to go to two arrows down with some activity. Make sure you have a calm sit at the table activity to transition to.
The other thing that is slowing control is it takes at least 3 days of dosing for Tresiba to build up to full strength in the body. It sounded like they made a dose change at your Friday appointment so that is going to take another 3 days before you see the full effect of that change.
The reason i am asking these questions is to see if we want to look at different doctors or this is normal.
I was diagnosed in 1990 and spent 5-6 days in the hospital. A diabetes educator met with my parents and I every day. When I was released I called my pediatrician every morning and evening and they figured out my dose for two weeks. After that it still felt like my family was tossed off the boat in the middle of the ocean to tread water.
If they did change the Tresiba dose send them the Dexcom Daily report Tuesday afternoon then call them. If they donât make you feel cared for reviewing the change let them know and give them the chance to adjust
Also i am trying to get a insulin pump, any suggestions on that too?
I agree with the others that suggested waiting a bit.
I hated being a human pin cushion. Now I just dislike it. A couple of things have helped⌠the model of pen needle matters. I think the BD Nano Gen 2 or the Novo Nordisk Novofine Plus hurt the least. Let the alcohol dry all the way. 33 gauge lancets still have a poking feeling but its a lot less than the samples (30 gauge?) that came with my Contour Next meter. Iâve only tried one box so I donât know if there is a better model yet.
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It is important to note that exercise increases blood sugar in some people. According to Healthline dot com, âweight lifting, sprinting, and intense aerobic exercise can promote an increase in BG that can last for hours,â I do treadmill or exercise bike, weights, and occasionally Peleton: those typically lower my numbers, so the effects on your daughter remain to be seen,
High numbers can cause the buildup of substances called ketones, and I find that no amount of insulin will bring my numbers down unless I flush them out of my system by drinking sugar-free fluids - a couple of large glasses of water work for me. That was standard practice as I was growing up and it still works for me today. Having said that though, donât do anything without checking with your doctor/medical team for guidance, as changes will affect how your daughterâs body responds to the insulin regimen that has been prescribed. Guidelines for âhow muchâ (exercise or even water) may be very different for a six year old child than they are for the adults - non-medical professionals - who are on the forum. And finally, doctors typically like to change one factor at a time in order to determine the references of the change; so adding in exercise white they are trying to determine the proper dose will cause confusion.
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@joe and @spdif : Thank u both for your help. Actually you both answered my questions, as i have both of these as my questions. I will look into locked down phone but I think i will prefer to still with Reciver for now.
Also I found out that the reciver and phone can both conent to Dexcom G7. so atleast when we are home, i have access to app and when she is in school. just the meter but good thing as soon as she come back. my app got all the data for the whole day. which help me to keeep a better eye in long term
@wadawabbit : Yes we started to work on the 504 plan. Also we asked the question about other kid but due to HIPAA law, they cannot tell us.
@spdif : Thanks very much for answering my questions. Yes we keep giving nurse and 24 helpline/doctor numbers and they take a closer look and tell us what to expect. Her numbers are definately more controlled in last week. Its just as new parent, its all our emotions.
Lukily she feel ok and play around 400 right now, I think i just need to be more patient which is hard as the days in ICU with DKA was misserable and Every second i just think that, Are I am doing everything in my power knowing, so that we do not end up in that ituation again.
Thanks a lot for all your support. it is really helpful
Thanks. I will see how excerise will affect her numbers. Also we are trying our best to give her more fuild to remove ketone buildup and i am checking her ketone level once a day and it seems to be in normal range of 0.0 to 0.3 till now.
Iâm allergic to Lantus, so that can be a thing. For her elevated blood sugars, you need to call the dr and ask how much insulin to give and how often.
@Kalpesh.gupta it is encouraging to see now that her ketone level appears to be in the ânormalâ range. It is important to know also that ketoacidosis and hyperglycemia are two very different conditions even though they sometimes occur together.
I was diagnosed at 13 years and my endo started me on a low dose because everyoneâs body reacts so differently to insulin. It took about 1.5-2 months of steadily increasing my doses every few days to finally get my blood sugars in range. In about 2 months time my Lantus dose tripled from 7 units a day to 22 units. My insulin to carb ratio went from 100g/unit to 10 g/unit. Crazy, huh? It was super frustrating.
I was between 200-350 for about a month after diagnosis. The first time I went below 200 I felt really low because my blood sugar had not been that low for 3+ months.
Iâve compared insulin doses with other teens my age and we vary by quite a bit. There is no standard dose- every one is unique and our doses change throughout our lives, as our bodies and life styles change.
Hang in there and be patient. Youâll find the right dose for your daughter, sooner or later. Because of the way insulin works, a unit too little can send you high and a unit too much can cause you to go dangerously low. Your doctors are going slow for a reason, even though itâs painful and frustrating!
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@6yGodsGr : thank u very much for sharing your story and your numbers. Its comforting to know that we are on a right path. Hope her numbers will come down soon.
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Awesome work @Kalpesh.gupta! Take a minute and give yourself a pat on the back. Diabetes has a big learning curve and your asking all the right questions. Keep at it as getting through these intro challenges will help you obtain a solid grasp in understanding how to manage this disease.
G7 will be a critical tool to assist you with BG management and control tracking. I know the shots can seem brutal, but getting good at using them is a skill you need to know until your daughter is old enough to manage the disease on her own (even when your daughter gets on the pump). Pens are the backup plan when all else fails. I used to keep a log before meals of BG, grams of carbs, and insulin units. I have them as a backup guide if my pump has issues and I go back to pens (which I still have in my fridge).
My thoughts are to not rush into a pump. Use this time to grow in your management skills. And when ready, take your time in researching pumps as they are different. Some require lots of inputs and others require minimal inputs. They also have many parts to manage from cartridges, connectors, tubes, insets, charging, and insulin vials/syringes to fill cartridges. And most insurances will only provide coverage for one pump every 4 years - check your insurance coverages when ready.
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