I’ve had T1D for over 50 years and am feeling more depressed than ever before. So tired of the relentlessness of it and the complete ignorance of most people, who think it’s no big deal to manage. Plus the never-ending struggle of getting the meds and supplies I need through insurance. If anyone on here can commiserate -please do. I’m NOT looking for simplistic advice on how to feel better,
… because as you and I both know Joanne, there is nothing simple about this. During my almost 70 years living with diabetes, I’ve been in your place many times and I really can’t put to words as to how I broke free. We - you, me, and most of the people here - know the frustrations that others will never see OR ACKNOWLEDGE, so …
Be proud of who you are and of what you have accomplished over the last 50 years - you are in a rare bunch!
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There are days when I just want to ignore my diabetes, eat what I want, take a random bolus and chase my numbers after the fact. Not something I would recommend but I think I can relate to your frustration.
I haven’t had many issues with insurance coverage but when there has been one it was usually because my doctor’s office needed to provide an authorization or additional information. Unfortunately I don’t know there’s a problem until I realize I’ve been waiting a little too long.
Oh heck yes. Just last night there was some unplanned activity, I went low, had to leave to get carbs, had to do a second dose of carbs, came back and it was over. This year my body decided to be different and I can’t do the high basal dose that was keeping the DP reasonable so I’m going from 80 to 250 overnight and that 250 will not budge till 11am regardless of the dose. My new endo hasn’t been any help to the point I may need change docs. And the supplies… would you like some highlights from my last call with Edgepark that was legendary bad?
Sounds like you have HISD like me. I put it on another forum, I didn’t want to scare the newly diagnosed that come here.
@Jophilly At least you didn’t call in your quarterly Dexcom order to find out your DME supplier has been “reorganized” under a different DME company like I did today. 
And saying reorganized is generous, the new company hasn’t finished, or maybe even started, importing customer records so I don’t exist yet. The rep was really nice and said they’d call back… this week. After I hung up I realized they’ll have to get a new script, PA, etc anyway so no matter what I’m starting over. At least the new company does show up as in network with my insurance.
How are you doing this week?
Oh that does sound awful Chris!
I’m on vacation so doing better as my mind is occupied with non- T1d issues.
Fingers crossed you can get your sensors quickly.
I’ve paid out of pocket at the local pharmacy to have an extra supply of sensors…it’s expensive, but the peace of mind feels worth it.
I hope that’s an option for you- just make sure your pharmacy carries the sensors before you have your doctor call the prescription in. Not all retail pharmacies carry them.
Good luck!
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